So, I’ll be staying at the Knight’s inn? The pictures don’t look tooo bad. But the reviews sound terrible. Also there’s no tv and no place within walking distance to go. So boredom will be a big problem!! Has a pool but I don’t swim. Not even internet in the rooms. Nobody not even my cat to talk to. Will be ithout my special interest and special friend. No attention has been paid to my depression. by my so-called “carers.” Guess you can’t put it in a box so they don’t care. What about me as a person? What about my Autism? Do I not matter? How much more of this pain can I take? Well, should I insist on the room with the jacuzzi?
I feel emotionally abandoned, “Michael” is moving me to a hotel while he comes to my apartment and throw everything out. No consideration is being shown to the fact that my mom’s tables-the only things I have left of her-are not being preserved. They are showing no consideration for my feelings what so ever. It’s like they are saying, we’re going to take you to this hotel. You have to but your beloved kitty who I desperately need for emotional support-to a vet for boarding. Leave the window of my apartment open in a very bad drug infested neighborhood. Buy new furniture since mine will be discarded. Isolate me in the hotel. Without access to my “support system” if you can call it that. Go without my special interest. The problems here have stemmed from my caseworker not doing his job. I am in a very bad depression. They told me they will replace my broken microwave and we are arranging for someone at another agency to come in a teach me life skills. Bought me a new outfit.Yet I feel emotionally betrayed and abandoned. There seems to be no thought to my depression and fears. I’m not sure really how to explain it. “Therapy” would be a prescripted thing designed for those with other disorders. No real input or interaction about what I’m feeling or am going through. One on one therapy would only take place every one or two months. Hello? All I have is a hotline number. They don’t care about how ,my Autism is doing. Emotionally I feel like I have been to the Judge Rotenberg center. granted, they are planning to help me move. But it’s like an emotionally sterile reaction on there part. My family is not there for me. it will be nice to come home to a clean air conditioned place. But my emotions are taking such a blow that I wonder if I’ll survive it. Those tables are precious to me. This pain feels like a physical assault. Can’t take much more. Tomarrow is supposedly D-day. That hotel sounds like torture. Although much nicer than here. Don’t know what to do. Granted they are going to pay for it. Hotel because other place didn’t work out. Might call hotline. What if I say I don’t want to go to hotel and board my kitty? I almost dread the answer. All this stuff was planned without input from me. Oh well. I’m a tough girl. There is a large plastic tub to put things in. That stuff I keep. the tables don’t fit inside. Feel like I am betraying my cat by boarding her. what will she think?. Don’t want to go “Michael” But will see what happens.
Celebrating America’s birthday can be fun. Including those on the Autism spectrum. But imagine if everywhere you turned, people were making noises as loud as a bomb? It hurt your ears and felt like a physical assault! It was NOT fun for you! Your anxiety level felt as if a big truck was speeding towards you. You couldn’t run. Get out of the way. Similar to being in a minefield. If you tried to tell others what it felt like, they said you were silly, imagining things, crazy, or that it wasn’t “that loud.” Having your routine disrupted added to the anxiety. And also there was loud music, people shouting, dogs barking,. You might not be able to tell when the next loud noise was going to come from. Or when. How close or far away. And you were ridiculed made fun of and prevented from covering your ears to protect yourself. If you said-that is if you could speak at all-those around you didn’t believe you. If all this sensory overload led to a meltdown, you were laughed at, punished, and maybe kept from doing the only things that filtered out the assault. Perhaps accused of ruining everybody else’s “fun.” Then came fireworks displays that are as loud as a jet plane. While the blow to your system continues without let up. That is what Independence day can be like for somebody with Autism. While some of the festivities may prove to be enjoyable, please be considerate. Especially around sensory sensitive children. Adults can walk away from the noise. Children-often taken to a park or other location-can’t.
A segment from the film “Making Our Way: Autism” about the importance of autism safety. Autism training and resources for law enforcement, parents, first responders and teachers.
To the person who found my blog by searching Google for “feel like I’m a burden Asperger’s. You are not a burden. Quoted from the link.
The people at Sesame Street Workshop have made a terrible mistake by partnering with Autism Speaks. Although we assume their intentions are positive, their association with Autism Speaks is downright dangerous for Autistic children, Autistic adults, those that love them, and all people wanting to learn about autism. Sesame Street Workshop educates children around the globe. If the information they use about autism comes from Autism Speaks, it could create detrimental repercussions for generations to come.
Because Sesame Street has not done it’s due diligence in learning about autism and Autistic culture before entering this partnership with an organization which is currently under protest by the very people it claims to serve, we must take action to #EducateSesame ourselves.
Please email your contribution to firstname.lastname@example.org by June 29th 2014. Quoted from the link.